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LoisKent
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 Posted: Sat 22 Mar - 13:10 Post subject: Epidermolysis Bullosa Medical Research |
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| Quote: | Cox calls on friends to help raise funds
LOS ANGELES --
Courteney Cox and David Arquette have a challenge for their famous friends: help raise $1 million in two weeks for Epidermolysis Bullosa, a rare skin condition that primarily affects children.
Joining Cox and Arquette in the awareness- and money-raising effort are Jennifer Aniston, Orlando Bloom, Kate Beckinsale, Rashida Jones, James Marsden and Eva Longoria Parker. All will lend their famous faces and financial support to the Epidermolysis Bullosa Medical Research Foundation, where Cox, Arquette and Aniston serve on the honorary advisory board. (Brad Pitt, Gwen Stefani and Gavin Rossdale are also members.)
"EB is very personal to me so I'm happy to be a part of this $1 million challenge," Cox said in a statement to The Associated Press. "Now is such an important time to put the spotlight on EB and ensure that research can continue at a fast pace."
Epidermolysis Bullosa is a debilitating genetic disorder that causes the skin to blister and break at the slightest touch. Victims are often covered in burn-like sores that never heal and most don't live beyond age 30. |
COX FAIT APPEL A SES AMIS POUR RECOLTER DES FONDS
Courteney Cox et David Arquette ont un challenge pour leurs célèbres amis : les aider à réunir $1 million en deux semaines pour l'Épidermolyse bulleuse, une maladie de peau, rare, qui affecte en particulier les enfants.
Se joignant au couple, dans cette sensibilisation - et dans la récolte des fonds des peoples telles que Jennifer Aniston, Orlando Bloom, Kate Beckinsale, Rashida Jones, James Marsden et Eva Longoria Parker. Tous sont prêts à faire voir leur visage et à apporter un soutien financier à la Epidermolysis Bullosa Medical Research Foundation, où Cox, Arquette et Aniston sont membres du comité consultatif. (Brad Pitt, Gwen Stefani et Gavin Rossdale sont aussi des membres).
"Eb est une chose qui me tient vraiment à coeur et je suis heureuse de pouvoir contribuer à ce challenge", a déclaré Cox. "Il est grand temps maintenant de faire prendre conscience de l'Épidermolyse bulleuse et de s'assurer que la recherche puisse continuer à grande vitesse."
L' épidermolyse bulleuse épidermolytique est une maladie génétique de la peau se caractérisant par une fragilité de la peau se traduisant par l'apparition de bulles ou de vésicules épidermique pour des traumatismes minimes de la peau. La plupart des personnes touchées par cette maladie ne vont pas jusqu'à 30 ans.
Source : http://www.charlotte.com/entertainment/story/545849.html
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orly-bloom68
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| Posted: Sat 22 Mar - 17:29 Post subject: Epidermolysis Bullosa Medical Research |
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quel générosité ce Orlando  merci pour l'info
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Aupalice
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| Posted: Sat 22 Mar - 20:37 Post subject: Epidermolysis Bullosa Medical Research |
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je connaissais meme pas cette maladiiie !! Généreux encore une fois !
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memnoch
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| Posted: Sun 23 Mar - 01:09 Post subject: Epidermolysis Bullosa Medical Research |
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Comme d'hab il a un grand coeur!
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LoisKent
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| Posted: Wed 9 Apr - 14:59 Post subject: Epidermolysis Bullosa Medical Research |
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Ken Paves and Eva Longoria Parker Raise $2 Million for Epidermolysis Bullosa
Celebrity hairstylist, Ken Paves, and Desperate Housewives star, Eva Longoria Parker, hosted a charity event to raise money and awareness for Epidermolysis Bullosa (EB). The event, held at Parker's new restaurant Beso in Hollywood, was attended by Paves' celebrity friends Jessica and Ashlee Simpson, Jennifer Aniston, Courtney Cox Arquette, David Arquette, Orlando Bloom and raised over $2 million. To continue the fundraising, celebs donated items for Ken Paves Big Give Charity Auction on Ebay - the auction starts today at 1:00 p.m.
According to the Epidermolysis Bullosa Medical Research Foundation (EBMRF), EB is a group of diseases characterized by blister formation after minor trauma to the skin. This family of disorders, most of which are inherited, range in severity from mild to the severely disabling and life-threatening diseases of the skin. This rare genetic disorder affects all ethnic and racial groups. Estimates indicate that as many as 100,000 Americans suffer from some form of EB.
Another way to support EB is by purchasing the beautiful butterfly necklaces that were designed by Satya Jewelry. For more information go to the Epidermolysis Bullosa page on Uptown Liz.
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Source : http://uptownliz.blogspot.com/2008/03/ken-paves-and-eva-longoria-parker-raise.html
La grosse information de cet article, c'est qu'Orlando et ses amis les stars ont pu récolter $2 millions pour la recherche contre l'EB. 
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Aupalice
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| Posted: Wed 9 Apr - 15:12 Post subject: Epidermolysis Bullosa Medical Research |
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fand'orlando
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| Posted: Wed 9 Apr - 16:59 Post subject: Epidermolysis Bullosa Medical Research |
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En plus d'être beau c'est un amour xD, il est parfait on y voit aucun défaut 
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Lulu
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| Posted: Wed 9 Apr - 17:36 Post subject: Epidermolysis Bullosa Medical Research |
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Waooow, quelle somme ! C'est géniial !!!
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Cassiopeeh
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| Posted: Wed 9 Apr - 19:17 Post subject: Epidermolysis Bullosa Medical Research |
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Le meilleur, je trouve, c'est qu'il arrive toujours a soutenir des maladies dont on n'a jamais entendu parler... ils les créent pour avoir des trucs à soutenir??? (ok, je me tais...)
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liline
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| Posted: Wed 9 Apr - 20:22 Post subject: Epidermolysis Bullosa Medical Research |
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memnoch
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| Posted: Wed 9 Apr - 22:07 Post subject: Epidermolysis Bullosa Medical Research |
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Super nouvelle, bravo à toutes les personnes qui ont données
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